me/cfs
About living with ME/CFS.
The unique added value of peer contact
Submitted by Jochem on Mon 27/06/2022 08:16Pagan with a disability
Submitted by Jochem on Mon 06/06/2022 08:13Chronically ill and (no) sex
Submitted by Jochem on Sat 30/04/2022 08:59Wanted: rehabilitation center with offer
Submitted by Jochem on Sat 09/10/2021 09:50A while ago I saw a petition on the website of HandicapNL calling for rehabilitation programs to be expanded with the transition from rehabilitation center to life at home. A justified demand, because that transition is very big. Too big. So I wholeheartedly support this petition! But it also made me jealous, because when I got sick, the reaction was: “You have to learn to live with it”. And I was outside again.
Chronically ill and (no) sex
Submitted by Jochem on Fri 02/07/2021 00:00Living with ME/CFS is… Taking the flu for 3 to 6 weeks as normal.
Submitted by Jochem on Fri 25/06/2021 07:15Speech confusion
Submitted by Jochem on Fri 04/06/2021 07:26Living with ME/CFS is… Getting lost in the fridge.
Submitted by Jochem on Sat 22/05/2021 11:04One day I wake up. I'm looking in the fridge, the open door in my hand. I hear someone asking: "What am I doing here?" For a moment I am surprised, because I am sure I didn't say anything. Yet it is my voice. I look around and I see a plate with two sandwiches on the counter. I realise I'm making lunch.
Living with ME/CFS is… A black-out by brainfog
Submitted by Jochem on Wed 20/11/2019 23:01I recently had to give a workshop. To be able to do that I brought a box of stuff with me, which fitted perfectly under the seat of my wheelchair. Ideal, because that way I had my hands free to wheel.
The night before I had everything ready, so in the morning I lash that box under my seat. No problem at all, because it is not difficult and moreover I had done that before.
The day is going fine. My workshop is going well and it leads to a number of interesting conversations afterwards. In short, I am satisfied.