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On this site I tell about my life as queer with a chronic illness. As a passionate storyteller, I exchange information with striking examples and personal experiences. Hopefully you are able to better empathise with my situation. And with that of many others...

ME/CFS & disease criteria: On the importance of different definitions

ME/CFS & disease criteria: On the importance of different definitions

In recent weeks there has been a lot of talk about criteria in ME/CFS. One organisation is in favour of the International Consensus Criteria (ICC), the other organisation wants the broadest possible target group. What's best now? I don't think you can use one fixed definition for our target group, because the definition depends on your goal. In this article I explain why that is the case.

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Living with ME/CFS is… Not realising having the flu.

Dog [photo: dife88]

Since I have ME/CFS, I haven't had flu! No. Again: since I have ME/CFS, I don't notice when I have flu. Because to me the symptoms of the flu are so much like the symptoms of ME/CFS that I can't tell them apart. That is why it often takes a week before I realise I am not having a bad week, but I have flu.

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