Living with ME/CFS is... After a excellent night's sleep, still waking up ruptured.
One of the most important characteristics of ME/CFS is "non-invigorating sleep". It is one of the criteria which doctors will use to make the diagnosis. (See also the Health Council's advice on ME/CFS, March 2018.)
It is almost impossible to explain what it is like to never wake up rested. I go to bed on time. I sleep fine. I also sleep long enough. My bed is perfect. Sleep centers can not find anything. Medication can not help me. And yet I never feel rested, or worse.
In such a case medics say: "You will have to learn to live with it". For me, it became "one of the things that goes with it" since I have ME/CFS.