About living with a disability or chronic illness.


“How good you do this for them!"

Sign for I Love You

Years ago I was on my way to the cinema with a group of friends. On our way we were approached by someone who asked for directions. No one in the group responded, except for me. That made sense: I was the only hearing one of our group. After I showed directions, they asked me if I was their mentor. "No, we are friends on our way to the cinema." I got an admiring look and the compliment that it was really good what I did.

Corona: terror and mass hysteria

Living in corona society (photo: congerdesign)

One of the consequences of corona amazes me: the absolute terror that rages through our society, resulting in a mild form of mass hysteria. Why this fear? Are we panicking because life suddenly turns out differently than we expected? Or is our taboo on dying and everything related to that, suddenly too close? It probably is a combination of factors this as well.

Help! Too many contacts because of corona

Constantly on the phone because of corona (photo: Susan Cipriano)

About a week ago I wrote the blog "Welcome to my world!". In this blog I wrote that my life hasn't changed since the corona measures, for I am housebound because of my disabilities anyway. That's not entirely true: now I am phoned by friends so more often, that I don't manage to do any useful stuff. A remarkable luxury problem: I have to cut my (digital) social contacts, because it is too much!

Welcome to my world!

Social media. Image by Gino Crescoli.

Nu het corona-virus rondwaart in een groot deel van de wereld gelden er ook in Nederland steeds strengere maatregelen om de epidemie te kunnen blijven controleren. Veel mensen vinden het moeilijk dat ze door alle maatregelen grotendeels aan huis gebonden zijn. Voor mij is dit mijn normale dagelijkse leven, want door mijn beperkingen ben ik altijd aan huis gebonden. Kortom, welkom in mijn wereld!

PFI-Netherlands Disability Network takes action

Logo Pagan Federation International (PFI)

Roll up your sleeves & get started!

At the third online meeting of the Disability Network our (inter)national coordinator Morgana was present. Morgana has updated us on international developments within the PFI, and beyond. As a result, this meeting was slightly different than the previous two meetings.


Recognition combines strengths: strength in numbers

Logo Pagan Federation International (PFI)

2nd online meeting PFI-NL Disability Network successful

We know that many pagans and heathens with a disability or chronic illness run into walls. Because it is very frustrating if you can't access the meeting that you really wanted to go to. Because you can be very lonely in the middle of the circle, sitting on a chair, while everyone is dancing around you. Because it is uncomfortable if you’re following the ritual only half, because you can’t hear the speaker(s) well enough. Because it is very painful if others don’t understand what you need to feel safe at an event.

Online PFI-NL about disability small, but nice!

Logo Pagan Federation International (PFI)

Sunday 15 September was the first online meeting with pagans and heathens with a disability. We were with a small group, but soon it was clear that all participants are used being a go-getter. As a result, we had a very good and effective conversation. The next online meeting is on October 27th at 15:00.

Report workshop “Dis_spelling disability: inclusiveness as a matter of fact”

Picture of Soleil and Jochem

At the PFI-NL Spring Gathering on 25th May one of the activities was a Community Circle about accessibility and the pagan/heathen community. It was the first time this theme was discussed this explicit at a meeting of PFI Netherlands. We look back with satisfaction at this interesting workshop, where we have taken a first step towards inclusiveness as a matter of fact.

ME-Livingroom meeting: Good intentions

ME-Living room meeting

Every month I organise ME-Living room groups, meetings for people with ME/CFS. At these meetings we exchange experiences, share tips about our lives with ME/CFS, and make new contacts. I supervise 2 groups: every 1st Monday and every 3rd Wednesday of the month. (Click here for more info.) Because our experiences might be interesting for others as well, I will share the summaries of our conversations here.

Living with tinnitus is… Being awake half the night because of a “mosquito”.

Last summer was not only warm, but also very rich in mosquitoes. In my area is a ditch with stagnant water, so I suffer from a lot of mosquitoes. For weeks I have crushed 10 to 15 mosquitoes, every night again. The buzzing of a mosquito makes me alert, and I won’t sleep until I caught the wrongdoer.