disability

About living with a disability or chronic illness.

English

Deities with a disability

The Aztec god Tezcatlipoca ("Smoking Mirror")

On 25th May, I gave a workshop on accessibility and the pagan community, together with a friend. This workshop was about the many deities with a disability, about what pagans with a disability can teach the community, and about practical tips for a more accessible community. My research into deities with a disability yielded a surprising result!

ME-Livingroom meeting: Good intentions

ME-Living room meeting

Every month I organise ME-Living room groups, meetings for people with ME/CFS. At these meetings we exchange experiences, share tips about our lives with ME/CFS, and make new contacts. I supervise 2 groups: every 1st Monday and every 3rd Wednesday of the month. (Click here for more info.) Because our experiences might be interesting for others as well, I will share the summaries of our conversations here.

Living with tinnitus is… Being awake half the night because of a “mosquito”.

Last summer was not only warm, but also very rich in mosquitoes. In my area is a ditch with stagnant water, so I suffer from a lot of mosquitoes. For weeks I have crushed 10 to 15 mosquitoes, every night again. The buzzing of a mosquito makes me alert, and I won’t sleep until I caught the wrongdoer.

Living with ME/CFS is… Say it again, please? I don’t understand…

One of the most important characteristics of ME/CFS is "impaired cognitive functioning", such as problems with understanding. It is even one of the criteria which doctors will use to make the diagnosis. (See also the Health Council's advice on ME/CFS, March 2018.)

Living with ME/CFS is... Living with food intolerances too

Toen ik ME/CVS kreeg, kreeg ik daar ook andere klachten bij. Een paar jaar voor ik ME/CVS kreeg, ontwikkelde ik een glutenintolerantie. Sinds een jaar heb ik er een lactose-intolerantie bij. Nu hoeft dit niet met elkaar samen te hangen, maar voedselintoleranties en ME/CVS komen zó vaak samen voor dat het waarschijnlijker is dat dit wel met elkaar te maken heeft.

ME-Livingroom meeting: Living with a chronic condition

ME-Living room meeting

Every month I organise ME-Living room groups, meetings for people with ME/CFS. At these meetings we exchange experiences, share tips about our lives with ME/CFS, and make new contacts. I supervise 2 groups: every 1st Monday and every 3rd Wednesday of the month. (Click here for more info.) Because our experiences might be interesting for others as well, I will share the summaries of our conversations here.

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