Alex Young aka ...
Tue 23/07/2019 02:01
I am always happy to see anti-psychobabble commentary. I agree that the evidence is overwhelming that ME is a physical condition, though it does involve the brain.
Its dubious to cite the WHO code as evidence though. Doctors are well aware its just a bureaucratic code. Its important for insurance and politics, but its not scientific.
There is enough hard biomedical evidence to show the extensive physical nature of the disease (or possibly family or spectrum of diseases). Psychobabblers will still try to say it might be physical, but its cause is mental.
I have blogged extensively on this, especially on Phoenix Rising.
When talking about vague symptoms, they are right that nearly all symptoms occur in other diseases. This is also the case for most of the biomedical testing. Yet that biomedical testing often matches the symptoms, or are associated with them, and establish a biological basis. We are now up to about 2500 biomarkers, and I strongly suspect that a full research lab, able to run any tests at all, will find hundreds to thousands of things wrong with each patient. Its a mistake to presume that the lack of a provable definitive diagnosis means nothing is wrong. It does mean that we really still do not understand ME though.
None of the stress/trauma research proves that these problems are not also physical. As soon as the word "mental" comes into play the psychobabblers can distort and claim and mislead.
One particular symptom, and the closely associated physical testing, is however unique to ME at this point in time. It is of course PEM, and the test that shows this best right now is the repeat CPET, though I am fascinated by invasive CPET. These are now well established findings, and ME patients are winning court cases based on CPET results.
Other research is showing similar things related to PEM. Most recently, and only presented at a conference so far, is that ME might be a form of acquired complex V deficiency. This is not supposed to be even possible, but the hard data shows this .... there is a recent article on Health Rising about this. There is this common dogmatic belief, utterly implausible, that mitochondrial disorders are only inherited. Its adherence to dogma, and the irrational and evidence-poor claims that go with this, that lie at the core of most psychobabble.
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